Friday, August 5, 2011

...FiNd yOuR StRoNg...

It’s easy to say that you know how you would react in a certain situation when you are not knee deep in the middle of it. It’s easy to have courage when you are not scared. It’s easy to be strong when things are going well. Dealing with the physical and mental pain that is necessary for growth does not come naturally. Sure, some of us have a higher pain tolerance than others, but as a general rule…it is human nature to want to avoid pain. Sometimes, we are faced with challenges in life that test our faith and our ability to be strong when no one would blame us for being weak. It is in those times that the strength we need is not always easy to find. I got to see this firsthand over the past week.

A couple of years ago, I took my then thirteen year old daughter, Savanna, to the pediatrician to get a routine physical for swim team. Everything was just as I expected so I wasn’t paying close attention as our doctor examined her. Towards the end of her exam, Dr. Sampson told her to take off her shirt so she could check her back. Savanna was not exactly excited about this but she did it. As the doctor made notes, she told Savanna to bend over. I wasn’t really looking at her, but I saw her bend out of the corner of my eye and heard the pediatrician say, “No Savanna. Bend ALL the way over.” Still not looking, I heard, “Savanna! I need you to put your feet together…don’t bend your knees and bend STRAIGHT down!” At this point I looked up and before I could tell Savy to do what the doctor said, the doctor looked at me and said, "Mom, we have a problem. Come over here and look at this.I was shocked at what I saw! My daughter was crooked. She couldn't even bend straight over and there was a very OBVIOUS curve in her spine. In typical "Mommy" fashion, I felt guilty. I started firing off questions like, "Weren't you tested for scoliosis in 5th grade?!?" "How could I have missed this?!?" Even though, there's nothing I could've done...I felt guilty. Things started to make sense. Things like how she was always over to the side when she set up on the blocks to dive at swim meets...and why she couldn't dive straight out but plopped in the water and then had to swim twice as fast to catch up.We were sent to Scottish Rite Hospital for children in Dallas to see a specialist there. They took x-rays and told us that she had a 43 degree curve. It was too late for a brace, but too early to talk about surgery since they usually wait until there are signs in the x-rays that the patient is done growing before they operate. We went back the following year. She now had a 45 degree curve, but was essentially done growing. They scheduled us to come back a year later which was this past spring. The doctor told us that she was not required to have surgery. A 50 degree or higher curve means that surgery is absolutely necessary. He also told us that she had what is called "trunk shift" which means the top of her body (waist up) and the bottom were not in alignment. It had become very obvious just by looking at her, that there was a problem and she was very sensitive about it. In the end, her doctor at Scottish Rite Hospital recommended surgery and she made the choice to do it. Savanna was tired of being crooked...tired of not being able to dive off the blocks at swim meets like everyone else...tired of having to worry about what clothes she could wear to hide it...and tired of feeling different. We supported her decision and made an appointment for surgery.

Fast forward to last week...the week of her surgery. We got up early and drove for 45 minutes to get to the hospital by 7:45 AM on Thursday. Me, Savanna, and her dad spent ALL day seeing doctors, nurses, dieticians, pharmacists. She gave blood, took multiple x-rays, and participated in a study. Her emotions were all over the place, but for the most part...she did well. She was looking forward to getting "straightened out" and although no one sugar coated what she would go through...I knew she had no concept of what she was in for. The doctor decided to do the posterior surgery. There's less chance of infection when the organs don't have to be moved like they are in the anterior option, but that means the doctor has to move the big muscles of the back which causes a lot of pain during recovery. I worried about her recovery. I wondered how she would hold up emotionally.The surgery was successful and went exactly as planed. MOST kids are groggy...tired...and super sleepy after a 4 hour surgery when they are wheeled into the recovery area...not Savanna. She was trying to sit up and talked incessantly. She kept taking my hand and saying "Is this a dream?" I said, "No. You are all done, baby." She would say "I did it?!?!?!" I said, "Yes. You did!" It amazed everyone there...and for the next 2 days...she continued to amaze us. She was so determined to get better. She wanted to be taken off all the things that were keeping her in bed.

Sunday morning they took her off oxygen and took her epidural and catheter out. She was so excited...and then reality set in. Once she was no longer attached to the epidural, her pain had to be managed through pills...and it's not the same. She was accustomed to a constant flow of medication.Everyone has been amazed be Savy's strength and great attitude throughout this process. It's not because she never had any low times. Savanna had times where she cried, but they were few and far between. She also had times where she felt angry and wondered if her decision to have surgery was worth it. The thing is...every time this happened, it was short lived. She was always able to dig down and find strength that I didn't know she had. She still has a long recovery ahead. It's hard to readjust your whole body alignment and it's hard to build back the physical strength after being in bed. Savanna has learned that lying in bed and sleeping is not the way to recover. When she is hurting, she gets up and walks laps in our house...not because I tell her too either. It's always HER decision.Some people think that being strong means NEVER having a weak moment...never shedding a tear...never feeling afraid. I disagree. Being strong doesn't mean being perfect. It's not about being a robot that feels and shows no emotion. When life gets you down or pain clouds your judgement, we all have the ability to find strength and work through those emotions...IF we choose to.

I have been exhausted. It wasn't fun sleeping in a plastic fold out bed for 5 nights and being woken up every two hours. I missed working out and eating normal food, but I wouldn't have done it any other way. What I sacrificed was tiny compared to what my daughter has endured. Savanna has taught me so much over the past week. The last day we were in the hospital, we were walking laps around the floor and she was getting tired and hurting. She turned and looked at me with those big blue eyes and said, "Mom. I'm proud of myself! I think that if I can do this...I can do anything for the rest of my life!" I smiled and said, "Yes you can Savanna! I'm proud of you too!Savanna found her strong. Have you found yours?







*Savanna helped me design a "Strong is the new skinny" tank that goes along with this! It says "Find your strong" inside of a heart and "strong is the new skinny" on the back. The significance of the heart is that when she was feeling stressed in the hospital the day before surgery, I drew a heart on her hand to remind her that she's loved. They are for sale now! To see it, click HERE!

10 comments:

  1. love this! what an inspiring story, and you can really see the love and support you have for your daughter. i can see where she gets her determination from. what a beautiful story. and i love the shirt!

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  2. her smile is amazing. So is her strength.
    thankyou for sharing her story: she'll be an inspiration next time I'll feel like whining.
    Also: she's really REALLY beautiful (and I know I might sound like a creep with a nickname like this, but I'm an italian female married photographer... just so you know :D)

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  3. You are such an inspiration. Speedy recovery to you!!

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  4. What a beautiful story! Thank you for sharing!! Lucky Mom..Lucky Daughter! Hugs to you both!

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  5. Thank you for sharing. I mean that from the bottom of my heart. My daughter is my inspiration but it took me 10 years to find my OWN strong. She too is battling scoliosis (infantile - up to 42 degrees, battled back below 20, now almost a year out of brace and holding... waiting to see what puberty will do) so your story is extra touching. Hoping for all the best for Savy and for you.

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  6. Well done Savannah, kids continue to amaze me with their resilience. Glad to see she's come out of surgery in good spirits.

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  7. Please tell your daughter she has given herself an amazing gift. My mom was diagnosed with scoliosis in the 1950's when they couldn't do anything and has suffered most of her adult life. We're praying for a speedy recovery and a pain-free life for her!! Such a brave girl!!

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  8. So proud of your daughter and I don't even know her. She displays immense strength both inside and out. And THAT is beyond beautiful.

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  9. Thank you all so much! Savanna is amazing! Update: I NEVER thought she'd make it back to school and be able to carry books. She went back Monday with no complaints. She is happy and healthy and I feel so blessed to have her as one of my three AMAZING kids!

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  10. What a beautiful post, and what a beautiful girl! She has such life in her smile. I'm glad her operation went so well. <3

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